Saturday, 17 May 2008

Artificial disc replacement- a dream for chronic backpain sufferers or bonanza for surgeons?

Dr Zeegers (right) and me

Alphaklinik, Munich

For countless numbers of chronic backache sufferers diagnosed with degenerated intervertebral discs, artificial disc replacement (ADR) is regarded as the preferred solution- High-Tec in contrast to the established alternative old-technology, vertebral fusion, and offers the dream of restoring a fully mobile, pain-free life. The growth of the internet has allowed back-sufferers the world over through glossy websites to learn about the new technology. It is not just by chance that simultaneously there has been a mushrooming in Europe of private clinics charging from £12,000 for a 1-level ADR to £32,000 for a 3-level ADR. Against the current background of a tightening of credit and a decline in economic activity in much of the developed world, clinics are competing for a growing but limited number of private ADR patients. One of the pioneers of ADR, Dr W.S. Zeegers, a Dutch surgeon (see above photo on the right) has recently commented that in their haste to milk this lucrative market, some of these clinics are offering ADR to desperate, vulnerable patients some of whose pre-operative back condition makes them highly unsuitable ADR candidates and asserts that a small but significant percentage of these patients in the months and years following their operation are coming to regret their decision.
My own case may be seen as a cautionary tale for would-be ADR candidates. It should be pointed out that ADR received NICE (National Institute for Clinical Excellence) approval in 2004 and there have been an increasing number of ADRs on the NHS but finding an orthopaedic surgeon with a large number of successful ADRs under-his-or-her-belt is difficult. I concluded that if I should contemplate an ADR it would be with a surgeon with a worldwide reputation who has carried out several thousand ADR operations.
It’s 8 o’clock one Friday morning in late April 2008 in the operating theatre of one of the leading ADR clinics in the world- Alphaklinik in Munich. The previous day over a 12 hour period after I had seen various specialists, undergone MRI scans and x-rays, a thorough neurological examination and cycled twice around Munich (it seemed) in the gym attached to a computer monitoring my heart and lungs, Dr Zeegers had concluded I should make a suitable candidate for ADR. Immediately ahead of my planned 2-level ADR operation it had been decided to carry out a discogram- a kind of medieval torture in which I was paying to allow a series of fine needles to be inserted under X-ray guidance, carefully avoiding my spinal cord, into my lumbar discs. The purpose of this diagnostic tool is to determine precisely which discs are causing pain and by injecting a water-soluble dye into the disc itself, to ascertain whether there is leakage from a disc rupture. Needless to say, during the procedure it is necessary to allow the patient to recover some level of sensation in order to ensure validity of the results. As each needle is inserted, withdrawn or just tweaked, as is expected with each degenerated disc, I screamed, faithfully leaped a foot off the operating table each time and was informed later I had at one point accidentally kicked the surgeon in the jaw. (Note-I must check the final bill to see whether I have been charged for dental restorative work!)
All apparently was going smoothly, with results as expected, when Dr Zeegers suddenly announced to a disbelieving theatre team that the surgery would not take place. I was taken to the recovery ward and the next day offered a thorough, 90 minute explanation for the decision (only the 3rd time he has called off an ADR so late in 10 years). He explained that central to his decision was his assessment of the probability of medium and longer term success. As he neared completion of the discogram he became concerned that my back’s instability would leave me vulnerable to a collapse of the ADR stack during golfplay and that were that to happen I could end up paralysed from the waist down. (There were additional issues of moderate scoliosis and poor soft tissue structure around the spine which had been taken into consideration earlier). He was simply not prepared to take the risk and though he felt depressed that I had had my hopes raised and then dashed, he was certain the right decision had been made.
Dr Zeegers left me drawing the conclusion that a different surgeon- perhaps less concerned with statistics and more concerned with profits might have decided to complete the operation. He commented that there are clinics which welcome older ADR candidates as there is a good chance they will pass away before the surgery fails!
Revision surgery for unsuccessful ADR operations is notoriously difficult and potentially dangerous. Worldwide there are a significant number of post-ADR patients who in the months following their operation run into a variety of subsequent spinal problems whose quality of life has not been restored (some with much-increased pain) and whose bank balance has been hugely depleted.
My dream (held for the last 10 years) of a successful ADR and a return to playing golf may have been dashed in Munich but I was able to shake hands with Dr Zeegers thanking him for his integrity and clinical judgement. The cost of my unproductive adventure to Munich was c.£5000 but I am left wondering whether this 63 year-old may have had a lucky escape. I am left contemplating the prospect of a spinal fusion operation in the next year or so on the NHS.

Sunday, 27 April 2008

ADR postscript

Thanks for all the best wishes messages. I am sorry I was unable to fulfil my plans to blog the Munich trip. The bald facts are that my request for a 1/2 or 3 level ADR was turned down as too risky after 14 hours thorough testing all day Thurday and a discogram. My spine is too unstable to take ADR when seen against a backdrop of an active lifestyle. I return to the UK to review the options- maybe fusion at some point, make lifestyle changes and to learn to accept that at 63 I should realize that my body is trying to tell me to slow down and take it a little more easy.

Monday, 21 April 2008

Last Wednesday I had on the NHS an MRI scan with dye contrast of my lumbar spine at the brand new high tech scanner at St Mary's Newport on the Isle of Wight (officially opened the next day by HRH Princess Anne). It had taken me 3 months nagging of my GP at my local GP centre to treat the suspect neuroma found at Xmas on the earlier scan as a potential cancer. Having had the scan I was given a copy of the images on disc but had to wait until this morning for the consultant's report. Over the weekend I had a call from Dr Zeegers whom I had emailed the images and we spent an hour discussing each image while he explained what we could see on our screens. Regarding the 5mm soft tissue neuroma he reassured me that it had not grown over 3 months and would be no barrier to back surgery. He also suggested he send the images to colleagues in France and the USA for a second opinion. This morning he emailed to say they too are sure the lump is benign. So all is set for the trip to Munich. Occured to me that the name of the local football team is Borussia Munchen Gladbach. Sounds as though that's exactly what I hope for my back!

Thursday, 3 April 2008

I have the date for my trip to see Dr Zeegers in Munich- April 24th for tests and 25th for surgery- possibly a 1-level ADR but maybe more. Travelling down by car with my brother as chauffeur stopping off enroute in Belgium. More like an adventure.

Thursday, 6 March 2008

Heard from my GP that the suspected neuroma found by the radiologist is nothing to be concerned about and most highly probably benign. However I am writing to her to ask that it is checked out ASAP on the Island. Meanwhile I am planning to go to Alphaklinik Munich after Easter for a discogram to determine whether I am a suitable candidate and if so, how many levels I need. Might only be a single level!

Saturday, 23 February 2008

Took a long call from Dr Z. of Alphaklinik this afternoon who has looked at my MRI and suggests I take a trip to Munich to investigate my back further. He thinks there's a chance that I might only need a 1-level ADR (or two possibly) but that discography will be needed to decide- OOCH! I can sense the pain already (where did I put those aspirins?).
Impressed again with his comms skills in English. I trust this guy not to urge me to go for the full ADR set (3) at 35K UKP just to line his pockets. Plan to go just after Easter if I can get a cheap flight.

Friday, 15 February 2008

Decided to approach Alpha-Klinik, Munich- Dr Zeegers and filled in the online web form and also sent an introductory letter and the latest MRI scan summary and bone density results. Amazed that within 24 hours the phone rang and it was Dr Zeegers! Wow! I was surprised that they got onto my case so quickly. I suspect that it is a policy to get back within 24hrs as a "Good PR/Good Comms" policy and I certainly was impressed- especially when he and his secretary speak good English. (I hear that Alpha charge 10K UKP less for a 3-level than Pro-Spine.) though that is not my primary motivation for a second approach. I need a second opinion on my suitability for ADR. I expect to take the Alpha approach further by sending my MRI CDROM over the weekend and see what transpires. It's great that I can read daily update blogs on 2 American patients both of whom are under the knife this week with 2-level ADR's- one with Pro-Spine and the other with Alpha!